j0438746.jpg Traumatic Brain Injury


This wiki was designed for those with Traumatic Brain Injuries, their family members, and people looking to find out more about this disability. The main mission in making this wiki was to design a site that is parent friendly. In this wiki, you will find general information about TBI and websites including: specific information, education, services, community/recreational resources, legal advocacy, support groups, educational conferences, and funding.




Definition:

Due to IDEA '04- an acquired injury to the brain caused by an eternal physical force, resulting in a total or partial functional disability or psychosocial impairment, or both, that adversely affects a child's educational performance. Traumatic brain injury applies to open or closed head injuries resulting in impairments in one or more areas, such as cognition; language; memory; attention; reasoning; abstract thinking; judgment; problem solving; sensory; perceptual; and motor abilities; psychosocial behavior; physical functions; information processing; and speech. The term does not apply to brain injuries that are congenital or degenerative, or to brain injuries induced by birth trauma.

Prevalence:

In children, more than 100,000 sustain brain injuries each year and of them 30,000 have permanent disabilities (most mild).

Types:

TBI ranges in severity from mild to severe cases. A person suffering from severe head injuries usually receive home instruction before returning to school part time. Many times, the effects will disappear eventually.



A personal story coming from a mother and son:
Watch this Youtube Video for a better understanding on TBI

A more informational video:
Watch this Youtube video to learn TBI facts



Categories

of Resources

Description

Links


Disability Specific Information

  • The Brain Injury Association of America has more than 40 chartered state affiliates and many chapters and support groups throughout the country. Their main goal is to serve and represent families and individuals who suffer from traumatic brain injury. They provide information, education and support to the families and individuals with TBI.

  • Brainline is a website that has information on it on preventing, dealing and living with a traumatic brain injury. On this website there is a electronic newspaper, webcasts, and outreach programs for people who have suffered a TBI, families and professionals in the field.

  • The centers for disease control website offers a wide range of information on all kinds of health problems. They have a lot of information on TBI and many other health issues. It is a great website for anyone to look up information on traumatic brain injuries

  • We found the list of books to the right on a great website that updates their list for people with or people who are interested in traumatic brain injuries. The website is http://www.braininjuryguide.org/braininjurybooks.html Many of these books on this website and to the right are from authors who have either suffered a traumatic brain injury themselves or have family members who have. Some of them are also collaborations of people with TBI and their family members.

List of books for TBI

  • Brain Injury Survivor's Guide

Welcome to Our World

By Beth & Larry Jameson

  • I Can't Remember Me

By Judy Martin-Urban & Courtney Martin Larson

  • Surviving Black Ice

By David W. Fierce

  • Over My Head

A Doctor's Own Story of Head Injury from the Inside Looking Out

By Claudia L. Osborn

  • Get to the Heart: My Story

By Barbara Mandrell & George Vescey

  • TBI Hell

A Traumatic Brain Injury Really Sucks

By George Gosling


Education and Services

  • The Kernan website is designed for the patients to find a doctor and make an appointment for the Kernan Hospital. They have a large rehabilitation center that strives to get the patients to reach their maximum potential after a injury.

  • At Sinai Hospital there is a rehabilitation center where there are many different TBI programs for patients. They also have podcasts that people can listen to about Traumatic Brain Injuries.

  • The brain injury association of Maryland website has many different resources for families and people that have traumatic brain injuries. This website also has a lot of links to other websites for people and families with TBI.


Local Support Groups and Educational Conferences

  • The TBI conference page is a website that was set up for people who have sustained TBI and their families. They use this website for educational purposes and are always putting new programs up that will help families with someone that has a TBI.

  • The education and training website we found also gives information such as research being done and information on TBI. It gives a list of educational trainings for families and people with TBI.

  • The support group website has a very long list of support groups in many areas. The Baltimore area, for example has the list of these support groups:

  1. Movin' Ahead Brain Injury Support Group: First Mondays of the month 6:00-8:00

  2. Caregivers Support Group: Fourth Tuesdays of the month 6:00-7:00

  3. RETURN! Brain Injury Support Group: Third Tuesdays of the month 7:00-8:30

  4. Timonium Brain Injury Support Group: Second Saturdays of the month 6:00-8:00

  5. Brain Injury Support Group for Children and Families: Starting April 14th 6:00-7:30

These are just some of the support groups that are offered in the Baltimore area. Also listed on this website are support groups in the Washington DC area, the central area, the southern area, northern area, West Virgina and Delaware areas.

  • The RETURN! Brain Injury Community Re-Entry Program is a day treatment program that serves individuals aged 18 years and older who have sustained a brain injury (traumatic brain injury, stroke, aneurysm, or other neurological conditions) and need special rehabilitation.

Support Groups/ Educational Programs:


Recreational and Community-based Resources

  • This link connects to a website where TBI treatment centers, programs, and services are listed. It also gives the option of finding these programs or similar ones in the state your living in.

  • The Recreation link includes a large list of resources and services for those with TBI. The list even includes places to go where their is easy accessibility for wheel chairs.

  • The Kids Needs website will show children with special needs, families and others comprehensive information including: professional opinions on important topics, learn about public health policy and advocacy efforts, link to programs, services and connect with other caring families and friends, and purchase a wide range of products.

  • Neuroscience for Kids is a website connected with a newsletter that can be sent to your home. This Newsletter creates opportunities to attend events or teach information about the brain. Those suffering with TBI can get connected and learn more about what has happened to them. They can also get involved as well.

  • In Silver Springs, Maryland, there is a program called America's Athletes with Disabilities (AAD). This program allows children to stimulate and promote the development of sports, health, fitness, etc. This recreation gives opportunities for joining sports teams, track and field games, awareness, and training.


Funding/Legal Advocacy

  • The Brain Injury Law Group's website gives a large variety of information about TBI in general. The website can set you up with law offices. It also teaches its' audience how to select the right lawyer for the case they are working with. The website gives many more references for topics concerning a Traumatic Brain Injury.

  • This link is an attachment from the Brain Injury Association of America. The newsletter gives information on all the benefits that people with Traumatic Brain Injury can receive.

  • This Website gives contact information to the Legal Advocacy at the Maryland Disability Law Center in Baltimore.

  • Social Security is a federal law that was enacted to protect workers and their dependents from the loss of income because of retirement, death or disability. The Social Security Website allows you to apply online.

  • Medicare is health insurance for people age 65 or older, under age 65 with certain disabilities,and any age with permanent kidney failure. For these standards, there is also two parts and two ways for Medicare coverage.



Meet the Creators

Emily Harrison

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Amanda Heilman

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